Henrik's mom, Janna, writes:
"On Wednesday December 27th Danny and I brought Henrik into the walk-in clinic for what we thought was going to be a routine in-and-out check up, get an antibiotic and go home. Based on a few more symptoms we decided to do a basic lab test called a CBC. Within minutes of receiving very abnormal lab results and seeing the concern from our pediatrician... I asked him to just tell it to me straight... his response, "It's likely leukemia." Our hearts sink. It's your worst fear. It's unreal. We can't even process it. We're hopeful that it's not. We were immediately sent over to the Children's Hospital ready for an inpatient admission. I asked the nurse which pediatrician is on call. She says his primary doctor will be doctor Kobrinsky... my heart sinks again.
Now for people that don't know Dr. K, I've learned over the past 3 days that he's the most amazing, brilliant, caring doctor that is so passionate about what he does, but no one wants their primary doctor to be a pediatric oncologist. We get into the room and get settled and as Dr. Kobrinsky is assessing him I look at him and ask 'This isn't anything else is it?' With his hands on Henrik's little tummy he looks at me and says with certainty 'This is cancer.'"
Update as of 4/19/18:
"I shouldn't even be writing this on such an emotionally exhausting day but I said I'd keep everyone updated. I won't say much, as we don't know much of what's next yet, but the results came back this morning from Henrik's bone marrow test and it's still positive for cancer cells. A bone marrow transplant is needed.
We will likely be discharged tomorrow, as everything with the methotrexate went routine. Harrison will be tested tomorrow. We will take Henrik to Mayo for his initial consult on Monday.
He still needs to reach remission before a transplant can be done. We will start a newer drug called Blimatumomab as soon as his counts recover from the methotrexate. It works on getting the cancer in a different way and infuses for 28 days straight.
His life is in someone else's hands. Someone who is selflessly willing to donate their healthy bone marrow so he can live... I pray for that someone. I pray that when they get the call they say yes. I pray for the family of that someone who will help them through the process. I pray for the medical team that will help that someone through the procedure and recovery. Please pray for them with me.
Thank you to everyone that has signed up through BeTheMatch.org. You never think you'll be in this humbling position. I hope I get a call one day so I can return the favor to someone in need.
We will update as things change. Thank you for the love and support."
So it continues...a brave and courageous fight against cancer. What 4 year old Superhero with leukemia doesn't need 'Hulk Juice' aka chemotherapy?! What a about his very own Superhero Squad?! That's where we come in! Show your love for this little boy and his family as he takes on the battle to beat leukemia. Order your superhero swag and when you recieve it, wear it proudly, post a picture, and use the hashtag #HopeForHenrik to let him know you have accepted this position as part of his squad. We love you buddy and with you every single step of the way!